this is real life dear reader

 

On Thursday my darling daughter had her first Infliximab (remicade) infusion.

All went smoothly and so far, two days post treatment, only the expected ‘minor’ side effects – she’s been warm, tired…

Fingers crossed this kicks her in to remission.

Big love baby girl xx

 

Infliximab 1 280213

 

 

 

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63 thoughts on “this is real life dear reader

  1. I hope everything goes well. So hard to watch our kids suffering.. xxx

  2. I am sorry to read this; the best wishes to you and your daughter.
    magdalena

  3. free penny press

    Sending lots of healing strength to your daughter!!

  4. Real life can be so hard. Thanks for sharing your brave daughter’s journey. Thinking of you all and wishing you well. Best, Ruth in Pittsburgh

  5. My thoughts are with you and your daughter… hope all goes well.

  6. sending good thoughts and prayers your way!

  7. Fingers crossed, prayers and blessings! xoxoM

  8. wishing her a speedy recovery

  9. Wishing your daughter the swiftest of recoveries and to your family, strength and comfort as she goes through this.

  10. you are both in my thoughts…wishing her well. Julia

  11. My heart is with you.

  12. I understand about auto immune diseases. Sending good thoughts and prayers to you and your daughter.

  13. I do infusions every 3-4 weeks for my Immune disorder. I take that time to just sit quietly, and watch a movie, or write. It takes some getting used to, but if it helps her health, hopefully your daughter will find some peace in it as well. Best wishes.

    • She’s ok with the actual infusion – she’s had three before this (emergency blood transfusion; and two iron infusions) . It’s more a matter of whether this drug will work for her you know? I love your attitude towards the treatment and will share those suggestions with her 🙂

  14. Please give her a big {{{hug}}} from me …

  15. Sending good healing thoughts to your daughter. So sorry you both have to go through this. Hope she is feeing better very soon!

  16. Thinking of you both, Annie.

  17. Sending good thoughts your way! xo!

  18. Always in my thoughts. Here.

  19. Wow. It’s happened. I’m sorry to read this but really hoping that this is the answer to the problem! I am meeting with a new GI specialist in a couple weeks to see if that’s the same route I should be on…who knows!! I wish your daughter the best and hope remission comes quickly 🙂

    Sending you both all my best, strength, and hugs!

    • Don’t be sorry. If this works it’s wonderful, the first choice treatment wasn’t working.
      We managed to get this on Govt approval so she has a few doses to find out if it works and then we try for more..
      Hoping it WORKS and that remission comes. And the same for you – I hope you get to try this too and that it works well xx

  20. You are both in my thoughts and prayers…

  21. Sending love, hope and best wishes your direction!

  22. Sending much love!!!! Hope healing its on its way for your daughter.

  23. {{{Hugs}}} to you and your daughter, Annie. love, Kozo

  24. Oh good luck Annie’s girl and Annie! When will you know if this is a viable treatment option for her?

    Big hugs, maggie

    • Not sure how long it takes to work that out Maggie. Follow up appt with specialist today but it could be a few more weeks before we know..I’ve heard that sometimes it’s after the second infusion before you know.

  25. Love and hugs to both you and your daughter, Annie. I think of you both often, and although our beliefs are different, I pray for you often. Definitely sending good wishes and good health thoughts your way.

  26. *Fingers crossed*

  27. I am currently on Remicade and it has helped tremendously with my symptoms. Hopefully she responds well to the treatment.

    • Thanks so much Vinnie.

      I’m glad to hear it’s been so helpful for you. My daughter has UC and in Australia it’s only approved for Crohns so after three doses we may not be able to get more!! I’m going to scream if that’s the case..

      Whereabouts are you?

  28. Hugs for you and your girl. Sending prayers for healing for her.

    PS Thanks for the follow – I thought you already were lol.

  29. Sending good thoughts to you and your daughter. I hope it is going well.

  30. […] should know, from the way she’s managed everything since diagnosis, that she can take on the world. Resilience is her new middle name […]

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