Sometimes I realise that we’ve accepted it and that we’re carrying on as though life is normal.
Then suddenly I’m crying again because how is this normal? How did this happen to my darling little one?
I know there is no answer, no room for why me’s in life…tomorrow we’ll spend most of the day at the hospital, infusion no. 4 of the good stuff coming up. And we are infinitely grateful for the drug, the nurse who will hook her up, her caring GI and IBD nurse – all involved in giving her ‘quality of life’ 🙂
Big love baby girl.
infliximab/remicade – photo from the first time